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Rise Above Parkinsons

Privacy Policy

Rise Above Parkinsons, Inc. (RAP) is committed to safeguarding your privacy and personal data. As a nonprofit organization, RAP’s mission is to provide non-medical financial assistance to people affected by Parkinson’s Disease or PSP so that they can get access to supportive resources and enjoy a rising quality of life. RAP uses the donations it receives to fund awards in furtherance of that goal. RAP may also offer digital and non-digital tools for people with Parkinson's or PSP and their families.

This Privacy Policy explains our online information practices and outlines the choices you can make about what information you provide, how your data is collected and how it is used. Keep in mind that RAP exists in order to provide financial support to people with Parkinson’s. Your choice to share information with RAP – including personal, private information – is deemed to be done with the knowledge that doing so will support RAP’s mission.  

From time to time, RAP conducts internal audits of its information practices and reserves the right to make changes to this policy. Changes to this policy are also made to comply with evolving legal and regulatory requirements, including the General Data Protection Regulation (GDPR) of the European Union.

This Privacy Policy applies to all information received by RAP, both online and offline, any electronic, written or oral communication you share with us, and any information you provide to third-party vendors operating on behalf of RAP. 

What Data We Collect

RAP collects several types of information about you, depending on the action you take. This data includes personal information that you directly submit to us as part of a registration, participation, or funding application, as well as through other digital and non-digital interfaces and platforms, such as email and social media. RAP may also collect information on your web behaviors as you navigate through RAP website through the use of cookies and other tracking technologies. The data collected by RAP generally falls into 3 categories:

1. Personal information, including name, email address, mailing address and personal connection to Parkinson’s disease.

2. Platform data, including your IP address, browsing actions and traffic patterns, which is automatically collected through cookies and other tracking technologies as you navigate our website. Our website and other digital platforms also include third-party features and widgets (e.g., social sharing) that may collect data.

3. Transactional data, including personal and credit card information, through secure purchases or donations submitted on our financial transaction pages. This information is used to acknowledge receipt of your donation for tax purposes and to include you on RAP’s mailing list, if you choose to join it. When you send a donation in honor or in memory of someone and request that an acknowledgement be sent to another individual, we will use the name and address of that individual for acknowledgement purposes only.

How We Use Your Data

RAP and its third-party vendors may use your personal, platform or transactional data to:

  • Provide you with relevant information about our programs and services

  • Carry out a request or transaction you have initiated

  • Analyze trends in user behavior

  • Optimize the performance of our website

  • Tailor and promote opportunities for engagement to meet your interests

  • Improve the technical performance and personalized experience of our website

  • For any other purposes with your consent


RAP does not sell or rent your information to others.


Your information may also be disclosed to comply with a court order, law or legal process or applicable regulation.


If you wish, you can modify your internet browser settings to alter which information gathering technologies are permitted, but this may limit some functionalities and features of our website.  


Data Security


We care about the security of your transactions and the data you share on our website. RAP applies industry-standard practices and technologies to safeguard your personal information. We use high-grade encryption and the secure https protocol to communicate with your browser, which guards against interception of any information you give us. We also employ several different security techniques to protect your personally identifiable information from unauthorized access by users inside and outside the organization.


All donations collected through this web site are processed through PayPal. You can access the PayPal privacy policy here. RAP does not collect or store your payment information.


You should be aware, however, that "perfect security" does not exist on the Internet, and third parties may unlawfully intercept or access transmissions or private communications.


Consistent with regulations of the United States and European Union, RAP takes many technical precautions to keep your data and privacy secure against security breaches. However, there is no guarantee that your information is completely safe from breach of our computer systems and servers. In the event of a breach, RAP will comply with its regulatory obligations.


Children's Privacy


None of the content and information on RAP's website is targeted toward children under 13 years of age. We make every effort possible to ensure that we do not collect or maintain information on our website from those we know to be younger than 16 unless parental consent has been obtained in writing.



Communication Preferences


RAP may provide an online form to join our communications list. If you have “opted-in” to receive communications, we may send you regular communications, either via email or regular mail.


You will be added to RAP’s email list only if you register to receive emails via a form or checkbox on Rise Above Parkinsons website. Email subscribers may select their preferred content streams, update their information, or unsubscribe from all email communications, by using the link at the bottom of all RAP emails. 


To protect your privacy and security and the identity of RAP’s donors and community members, we will take certain steps to verify your identity before granting access to your information or making corrections. You will be asked specific questions, including full name, address, phone number, and, if applicable, credit card numbers and/or expiration date. 


Contact Us


If you have specific questions or concerns about this Privacy Policy, or if you would like access to the personal information you have provided RAP, please contact us at [email protected]


Links to Other Websites


RAP's site may include links, some temporary and some permanent, to other websites. We are not responsible for the privacy and security practices of any other website or the nature of the content contained therein.